Birthday boy (yesterday)

Our little boy is now 1461 days (4 years), and we all think that that is something to celebrate, especially because we were told that he might not make it one day. But look at him now:

Happy.....in a happy/vomiting looking sort of way.

Sad

Excited

Attempting the impossible (aka -trying to wink)

Sleepy

Unsure

And, adorable!

Happy Birthday, buddy! Go ahead, blow out your candles (or your dandelion) because you deserve it! We're so grateful for the last 1461 day and every day that we have with you. We love you!

7 months old

My little sweetie is already 7 months, and those 7 months flew right by in the blink of an eye.

It seems like yesterday when I brought her home from the hospital, was supporting her head when she was held, nursing her at all hours of the night, and waiting patiently for her to smile. Now, she can crawl all around the room, sit up on her own, and almost never stops smiling and laughing. And, truthfully, I'm a little sad that my baby is growing up so fast.

I can't begin to describe what our little Blythe means to our family, nor can I even begin to describe how much we love this little baby. But, if I had to describe her in one word, it would be: delightful. For she is a complete delight.

I've heard mixed reports from people who have had a child after having an ill child, and they range all the way from "healing," to "not the best decision," to "a huge change." But, I can say without hesitation, that having this little baby has given us something in our lives that we never expected - Heaven on earth. For she has brought our family back together and made us forget that there was ever any chaos, or that there will ever be.

We love you, baby girl, and we're so grateful that you were sent to our home and get to be ours forever! But, please, stop growing up so fast!

P.S - thanks Kally and Rick for taking such great pictures of all of my kiddos! You're so talented!

Kid Captain

(aren't his curls adorable? I can't bring myself to cut his hair, even though, when wet, his hair hangs clear past his nose)

Every year the University of Iowa Children's Hospital chooses 13 children (out of about 300 applicants) who are current and former patients of the hospital, for their Kid Captain program for each of the Iowa Hawkeye football games (both home and away games). And, guess what? This year, our little Beckham was chosen! How cool is that? Here is a link to the official announcement.

On top of him being chosen to be honored at the Iowa bowl game, given that they go to a bowl game (he will also be mentioned at the Pittsburgh vs. Iowa game which we will attend), they also came to our house and filmed a video of him which will be displayed at the game and will be available on YouTube, and they took pictures of him in a Hawkeye jersey. I wish I could display all of the pictures they took, but the photographer charges a ridiculous amount of money just for a copy (seriously! She wants $20 for just one a 5x7. Really?). Though, my favorite part of the photo shoot was when the photographer was taking pictures of Beckham (he was conveniently being defiant to everything she asked him to do....shocker), and she asked him to hold up his finger and shout, "Hawks are #1." He responded by holding up his middle finger (he likes to point with that finger), smile mischievously, and shout that the "Hawks are #1." It was classic!

Thank you, University of Iowa Children's Hospital for choosing our little guy! We feel very honored and grateful that Beckham gets to have this opportunity.

-Beckham & Co.

30

Tomorrow I turn 30. Yes, 30. Thirty years old. And, truthfully, I'm feeling old. Old, in the sense that I always thought I'd be in my 20's, always have young children, always have a 21 year old body, and always have hair that I dye for fun and not because I have to hide the grays. But not any longer. Sheesh. I'm not going to be that person anymore. And I'm feeling old.

Last night I was standing in front of the mirror examining my hair for grays, when my cute husband came in. I turned and looked at him, frowned, and asked if he's still going to like me when I'm 30, when I'm not his young 20-something wife, when people don't look at me anymore and ask if I'm 18. His response? Well, it was the usual rolling of the eyes, but then followed by him taking me in his arms and telling me that he'll always love me, no matter my age. What a guy, right?

This morning, as I woke up to my screaming 6 month old, ready for her 4 AM feeding, I felt old again. Old, in the sense that I've come to realize that sleep is a thing of the past, that I am no longer the boss - my children are -, and that my children are growing up way too quick. But, as the hours wore on (my little Blythe refused to go back to sleep until nearly 7:00 - oh joy), and as I held my restless baby, I got to thinking about my 20's, about all the things that have transpired during these years. And, unconsciously, a mental list was made in my head, documenting my life for the past 10 years.

- I went to college

- Got my first car, moved out of my parents house, got a real job

- I met my Nate and was married at 21

- We moved to Salt Lake City, UT

- I had 2 miscarriages

- We moved to Des Moines, IA

- We bought our first house

- I had our sweet, Gwen

- And, 13 months later, I had our sweet Beckham...

Who had a heart transplant

Who had a stroke

Who nearly gave me a stroke!

Who spent over 200 days in the hospital

Who developed Evans Syndrome

Who....okay, I'll end the "Beckham" list because it will get way too long!

- Nate graduated from Nursing school

- We moved to Iowa City for Nate's NP doctorate

- I was diagnosed with Thyroid cancer while 7 months prego

- I had our sweet baby, Blythe

- Blah, blah, blah

But, then, I realized that my 20's were so much more than a list, a list that might sound a tad trite. For they were the most meaningful time of my life, and, they could not be documented so trivial. So, because of this, I made another mental list, documenting more in depth what my life in my 20's has been.

- I became independent and learned to appreciate my parents when I moved away

- I had to learn responsibility and make car, rent, and tuition payments (which sucked!)

- I fell in love for the first time to the most amazing man I know, and married him for time and all eternity in the Temple

- We moved away from our home in Utah, and fell in love with the people of Iowa

- I became a mother for the first time - something that was even harder and even better than I ever could have imagined - to a baby girl

- I birthed a huge, darling baby boy, and then had to watch him suffer over and over and over again, ripping my heart out with ever step of the way. But I got to witness miracles, miraculous miracles, and see my family brought together because of all he has gone through, and also see the healing that happened to a family who lost their son, and gave my son his heart

- I watch my husband succeed, despite all of our trials

- I realized that, even with a huge scar on your neck, a cancer diagnosis, and the loss of a thyroid, you can still feel beautiful

- I was given a gift of a 3rd child, who has blessed our lives, and has healed us all

I'm okay with turning 30....that is, if my 30's will be a little less hectic, and a little more low key. But, no matter how they turn out, I still am surrounded by the blessings of my 20's, and the people that I love the most. And, for me, that make's getting older just fine.

Make-A-Wish

This amazing organization

came and asked this cute, curly haired, little boy

to make a wish. And, guess what? He wished to meet these entertainers:

(I know, it's a shocker that he chose to meet them, right?)

And the best part (not that seeing 4 grown men, dancing around in colored shirts, singing to children, isn't exciting enough!)? He gets to meet them here:

and WOW is he excited (and the rest of us, too....though we're a little more excited for the latter).

Thank you Make-A-Wish Foundation! You've given our little Beckham something that will mean more to him than we could ever fathom. We can't wait to take this trip as a family and see the expression that comes across his face when he gets to see The Wiggles in person. I know it will be priceless!

5 years old

Our little Gwen turned 5 today...

yes, 5....

already 5 years old....

Yikes!....

and just as beautiful and more, than the day she was born....

and boy do we love her!

Happy Birthday, beautiful Gwen! Your little life has blessed our home in a way we never could have imagined. We love you!

Boo to the Flu

Last week was Spring Break, which should have been filled with park outings, picnics, swimming, and basically anything where we could enjoy the slight warmth in our Iowa weather. But, unfortunately, it was anything but...and "but" meaning: fevers, snot, coughing and, of course, an ER visit with a confirmed Flu diagnosis. Yeah, Spring Break was spent a little more like this:

We've all stayed relatively healthy in our household for the last little while give or take a few sniffles and so forth, and more importantly, we've had a hospital-free streak for Beckham for almost 6 months (a record!). And I was hoping to keep this steak up, but, sadly, that was not the case. The whole family except myself (not sure how that happened) caught the flu bug, and was quite sick, but bounced back after 3 or 4 days. But when Beckham spiked a fever last Monday that would not go down past 103.8 with Tylenol, I knew that we were ER bound. Beck's fever lasted not 1, or 2, but 6 days straight. And I'm not talking about low grade fevers, but smoking hot fevers where we had to use Ibuprofen (for those that don't know, Ibuprofen is a "no-no" for transplant patients) to get them to at least go down to 102. Because of the fevers, Beckham, broke out if sores all over his mouth, chin, tongue, and up his nose. And, the blisters only got worse because they are on a 3 year old that will not keep his hands out of his nose because, in his words, "booger's are so yummy" (awesome). The good news is that we avoided a hospital stay, but only just barely.

As for now, Beck's fevers have finally broken, but he still looks pretty rough and is still achy all over his body, which his doctor believes is from Synovitis - accumulations of fluid (from his flu virus) around his joints, causing severe pain. But, so far, we have not noticed any signs of him bouncing back into his blood disorders - Evans Syndrome or Glannzman Thrombathsthenia - and we are crossing our fingers that it stays that way.

Here's to hoping that next year's Spring Break will have a little bit of a different outcome, and that we might get a flu shot that covers all the forms of the flu. Hmm...I can hope, right?

Being their mommy.....

I know it has been a while since I have posted, and I know that the blog is due for a update about our family of 5, but that is going to have to wait because tonight I have a little something else on mind, something that I won't be able to get off my mind until I type it out. Here goes:

Most of our - our, meaning the kids and I - days are spent inside our little house in Iowa, stir crazy, and waiting impatiently for this long, cold winter to end. And, sadly, it seems like Mother Nature is bent on making it so that never happens, torturing us with constant cold, wet weather, making our short 24 hour days, seemingly endless. And, as you can imagine, the kids and I are more-than-ready to go outside and spend time doing anything but indoor activities, but knowing this will have to wait for a little while longer.

Today was definitely one of those days - long, cold, stir crazy, and without Nate to help distract us all. Plus, I was up to my ears in laundry, had nothing started for dinner, and my patience was completely shot. And, of course, my children made sure to test every boundary during this day, making me want to rip out every last hair on my head. They had been to time out so many times today (except Blythe, of course!) that it was more like a vacation spot than a punishment.

Take for instance my little Gwen -

So sweet, so loving, and so full of question after question after question. And, when she is not asking a question, she is tattling on her little brother, and not just some of the time, but ALL of the time (I bet that if tattling were a major in college, Gwen would have a PhD!). Today was totally one of those "question" and "tattling" days, followed with meltdowns every time I did not have an answer to her question and when I did not get after her brother after she tattled on him.

Also, there is my boy, Beckham -

So cute, so funny, and so FREAKING naughty! Seriously, I thought that he would have grown out of the naughty "2 year old" stage now that he is 3, but it seems to only get worse with age. And today, after purposefully making a mess of everything I cleaned up, climbing my bookshelves, destroying our DVD's, and then literally making a swimming pool on the bathroom floor during his bath, he also decided that the best place to wipe his chocolate covered mouth was on my off-white rocking chair cushions (lovely).

Even our perfect, beautiful, and precious baby girl, Blythe, had a super gassy day, requiring my arms to be holding her for almost the entire day. Normally this would not be an issue because I love to hold my babies! Love, love, love it! But today was hard as I had two other kiddos requiring a lot of attention, and my cute husband was working and not able to offer another set of arms.

So, as bed time rolled around tonight, and as I was finally able to have some "me time" and sit down without an interruption, and maybe stew over my frustrations, you'd think that I would be grateful for the break, or relieved that I was finally able to have some time away from my kiddos...but I wasn't. Actually, on the contrary, I was missing them, missing their faces, missing their smiles and missing their laughter. And, as strange as it might sound, I wished they were awake.

I hated that I spent the entire day being annoyed and flustered, when they bring me more joy than I can even express. I hated that I could be so selfish as to lose my patience over and over and over again when they are only being children, and only doing what they do best...and that is being them.

And, so, I got up and went to their bedrooms and looked at their sweet sleeping faces and thought "I can't believe they're mine!" and "how did I get so lucky as to be their mom?" And then I went and prayed to my Heavenly Father, thanking Him for my children, asking for forgiveness for my shortcomings and promising to do better tomorrow.

I love being a mom. Love, love, love it! There is nothing else I'd rather be doing. And, even though I have days like today full of busy, frustrating kiddos, and where I am makeup-less, have yet to have a shower and it's 10:00 PM, and am covered in baby puke, I know that it's worth it. The good and the bad, the happy the sad, the whole she-bang. It will always be worth it.

-Kim

Please watch the Rose Bowl Parade!

We feel so honored that Beckham's heart donor, Jake Campbell, has been chosen to be featured on a floragraph on the Donate Life float at the Rose Bowl Parade tomorrow. Please tune in to the parade that will start at 8:00 AM, Pacific Standard time (that's 10:00 AM Central time), and look for the 10th float (the Donate Life float).

Here's a sneak peak at Jake's floragraph:

We wish so much that we could be there to see the float, floragraph, and the Campbell's in person, but with a brand new baby, it is not the best idea. I guess we'll just have to be there in spirit because we cannot even begin to describe how much this means to our family - to have Jake honored for the hero he has been in our lives!

-Beckham & Co.

Our baby girly is here....

....and we sure do love her!

introducing: Blythe Kimberly Scadlock

After a 23 hours of labor consisting of being in the hospital all night on the 10th, being sent home because I was not dilating (I might have muttered a few choice words when that happened! You just don't send a girl in labor home!), returning home and having my water break on the 11th, and finally having her on the 12th, Blythe made her appearance into the world on 12/12/10 at 2:56 AM. She weighed 7.6 lbs, is 19 inches long, and is healthy and as beautiful as we could have hoped for. We are seriously in love with this baby and more thankful to our Heavenly Father than we can even express. Sorry this post is a little after the birth of the baby, but I forgot how much work a newborn is, and finding time to blog is WAY harder than it was before.

Nate, minutes after she was born. Such a proud daddy.

This is the first time the kiddos were able to see Blythe. Gwen was in love, Beck...hmm...not so much (as is apparent with the look on his face!).

Don't worry, though, he warmed up to the idea of being a big brother pretty fast!

This photo is a little blurry (it was taken with my phone), but is their anything cuter than Gwen's expression? She is completely taken and crazy about her little sister!

And here she is at day 3, absolutely perfect! Love her!

Thank you to all our amazing friends here in Iowa City that watched our kiddos while Nate and I were in the hospital. We could not have done this without you! Actually, Blythe was born during a blizzard, and we are so grateful that we were able to get Gwen and Beck to our friends house in safety and get ourselves safely to the hospital in the process.

It feels so strange taking care of a baby that you does not require large amounts of meds, monitoring, and multiple daily doctor appointments, but we'd take her however she came! Welcome to our family, baby Blythe. We couldn't be more grateful to have you as our own!

A new post (finally!)

(Warning: all pictures in the post were taken on my phone and are fuzzy. We had to reset our computer and in doing so, our camera software was erased and now has to be reinstalled. I have been trying to reinstall it this morning...obviously I am not smart enough for the task!)

This has to be my longest blog hiatus ever! Over a month without a post? Sheesh. I wish I could chalk it up to something super incredible and exciting, but the fact of the matter is that it's mainly due to laziness. Pure, plain laziness. Sad!

The great news is that we are all doing great, staying healthy, and enjoying our holiday season. Our baby girl has yet to be born, but I'm thinking that it will happen sooner than later. I am already dilated to a 2 and about 60% effaced. Both Gwen and Beckham were born at 38 weeks, which I will be on Wednesday, so I guess we'll have to see if this baby follows the same suit as well. We're sure excited for her to join our family, though, and none

-so-much-so as our little Gwen. She asks everyday if the baby can come out, and every time I go to the bathroom she asks if I am having the baby. Love it!

Me in my 9 month pregnancy glory (doesn't my hand look huge?)! My favorite part is Gwen's smile in the background.

As for a Beckham update, he is doing fabulous. A few weeks after I was diagnosed with cancer, Beck's puking a pooping decided to stop on it's own. It was almost as if his little body knew that there was more craziness in our house and that it needed to give us a break. It could also be due to the fact that he was treated for just about everything under the sun (GI treatments), and something decided to work and cure whatever what reeking havoc in his body. Either way, I'm sure glad it's over! It's so nice to see Beckham healthy and happy and gaining weight. He finally reached to 30lbs mark - something we have been hoping for, for over a year - and continues to gain weight and have healthy normal labs with perfect platelets and hemoglobin. Actually, both his cardiologist and hematologist are blown away at how well he is doing both heart wise and blood wise. The trick now is to keep him healthy and from relapsing into his Evan's Syndrome. His remission period from his Evan's Syndrome last year was about 7 months, and we are hoping to blow that record out of the water!

Beckham wearing his potty seat as a hat. Sadly, this is as far as we have come in potty training progress.

As for me, I am doing great as well. I am also considered "in remission," as the doctor has removed all of the signs of cancer from my body. He (my oncologist) would like to do the radiation treatment sooner than later (meaning, in 6 months instead of a year) because of the fact that there were some micro-cancerous cells found in my dissected thyroid, meaning that the cancerous tumor was probably just about to enter my thyroid. This does not change anything in my condition because my thyroid is gone, and it's a great thing that we decided to removed the whole thing instead of only the tumor itself, but it only changes the fact that he would like to get the radiation over with so that there is no risk of the cancer coming back. Make sense?

Now, all that is left is to get through the next couple of weeks with the birth of our baby girl, Nate taking finals and finishing up this semester, and Christmas fast approaching. Keep checking back for news of our new arrival. I promise to keep the blog updated on that!

This picture has nothing to do with the post, but I just love it and love those kiddos!

-Beckham & Co.

Pathology report

I figured that it was about time for me to start writing on the blog again. I want to thank my cute husband for making the last couple of posts when I was a little lost for words, and for explaining in detail what is going on with my health. I actually found myself reading his posts over and over again so that I could better understand my diagnosis and treatments. I'm so grateful that I have a medically educated husband!

As for me, I am slowly healing, and I say "slowly" because I am not healing as fast as I would like (I'm super impatient, obviously)! I kept hearing from doctors and others who have gone through this procedure, that is was easy and easy to recover from. Well, no offense, but they either have a very high pain tolerance, or they are full of crap! The neck is a super sensitive area that hurts every time I speak, swallow, breathe, eat, hiccup, burp, sneeze, turn or nod my head, cough, and much more. All I can say is OUCH! Big ouch! Also, another thing that I am healing from is the whacked out feeling that comes when you don't have a thyroid. I am currently on a medication to compensate for the functions of my thyroid, but it will not be properly regulated for at least 10 weeks. Plus, my symptoms are magnified because of the pregnancy. It's okay, though, because the cost of having the cancer out of my body outweighs both the pain of the surgery and the weird feeling from not having a thyroid. I am nothing but grateful at this point (seriously).

And speaking of "point," the point we are at right now is very positive! I recently received the pathology report from what was taken out of my neck, and everything looks great. The 2.1 cm tumor was cancerous (which we already knew), but the cancer did not spread into the rest of my thyroid, or to my lymph nodes (they removed 10 lymph nodes from my neck and all came back negative for cancer). Yeah! I will still receive the radiation treatment (radioiodine) because of the size of my tumor, but this is basically precautionary to make sure that the surgeon got out all of the cancer cells from my neck. And the radiation will be done after the baby is born and can be postponed as long as a year if I choose to nurse the baby that long.

Thank you, thank you, and thank you to everyone that has supported my family and I during this time. I cannot even begin to express my gratitude for every large and small thing that has been done for us. It is so hard to find ourselves continuously in a...hmm...stressful (for lack of a better word) situation, and to be far away from family makes it even harder. But to know that we have those that support, carry, and provide for us from afar, and even close by, in a new town that we are still becoming familiar with, means everything. Thank you so much to infinity!

We're going to be alright and we'll get through all of our trying times. Because, despite everything we go through, we have wonderful, blessed, and happy lives. And, I know that "Adversity, if handled correctly, can be a blessing in our lives. [and] We can learn to love it." (quote found here).

Lots and lots of love!
-Kim

P.S - I would add a picture of neck, but it is not a beautiful sight right now (the incision site is a lot bigger than I would have liked). Scarfs are now my best friend and will be for the next little while! I've always wanted to be able to pull off the scarf trend, looks like I just got my chance.

Pfft...thyroid - shmyroid.

Tuesday morning, Kim and I arrived at the hospital just after 6am. We entered the surgical unit with a herd of other groggy, yet anxious, early-goers that would also soon be under the knife. After a bit of prep work, Kim was taken to surgery just before 8am, where she would spend the next 5 hours. Despite the narrow surgical area, a thyroidectomy takes quite a while because of the small and fragile anatomy of the anterior neck. The physician must be sure to avoid damaging important nerves, the parathyroid glands, or the "voice box". (I wanted to picture of a dissected thyroid, but Kim wasn't cool with that idea...you should google it though)

According to the doctor, the surgery went well and they were able to remove the entire thyroid without too much damage to the area. He did say that the parathyroid were "kind of beat up" in the process which is likely why Kim's calcium levels are now a bit low. That problem should be self-resolving with time. He also removed the lymph nodes in the area which will go to pathology and help us determine whether or not the cancer was outside of the thyroid. This takes 5 to 7 days.

After the surgery, she was taken to the PACU for the next 4 hours. That time line isn't typical, but there was no room at the University of Iowa inn. Eventually they found a room in the Burn Unit where she spent the night and was able to come home around noon this morning.

All things being considered, she is doing well, we are just trying to keep the pain under control. It has proven to be a very sensitive area, which is to be expected. Try talking, coughing, hiccuping, deep breathing, nodding your head, or turning your head without using any anterior neck muscles. It is tough.

Thank you everybody that has sent cards, boxes of stuff, called, texted, sent meals, Facebooked, or sent good thoughts and prayers in any other way. If we haven't responded back we apologize, we've just been a bit busy but we are very grateful for the sentiments.

Thank you,

The Scadlocks

Cancer Sucks

Long time readers of this blog know that when I author a post (this is Nate, by-the-way) it usually isn't a positive occurence being recorded for all of blogosphere. Today is not an exception.

Kim and I visited with her oncologist today to discuss her thyroid problems, to which the oncologist accredited to thyroid cancer. In short, Kim has papillary carcinoma, a cancerous tumor in her thyroid - though the extent of the cancer will not be fully determined until after the thyroidectomy. On October 12th she will undergo a total thyroidectomy in which they will remove the entire thyroid, after which she will spend the night in the hospital. Normally radiation therapy would follow a few weeks after the surgery, but because of pregnancy this will not occur until after the birth of our new baby girl. We were given the option to put off the surgery until after the baby was born, but at the risk of the tumor metastasizing to the rest of the body - decreasing likelihood of a positive outcome. Normally thyroid cancers are not overaggressive, but the rapid onset of Kim's tumor has caused concern. For this reason it has been decided to proceed with the surgery now and wait on the radiation. The radiation treatment is called radioiodine therapy and is used to detect and destroy any metastasis and remaining tissue in the thyroid.

Prognosis is very positive for thyroid cancer with a survival rate that exceeds 90%. Kim will have to take Levothyroxine (Synthroid) for the rest of her life to compensate for the missing functions of her (soon to be) missing thyroid. As for the radioiodine treatment, it isn't fun, but it is manageable. It will be tough in that the person taking the medication is 'radioactive' and supposed to avoid contact with other people for a few days.

Other than reasonable fear and anxiety of the unknown, Kim is doing very well. She isn't feeling sick other than normal pregnancy feelings (though that may be masking some thyroid symptoms). We are both confident that after the proper treatments that she will be well. We both agree that having gone through everything with Beckham that it has probably made this easier for us to face than it might have otherwise.

As we were entering the Holden Cancer Center at the University of Iowa we saw a good friend of ours that we didn't know was battling breast cancer. It was a good reminder, as occurred many times through Beckham's many hospitalizations, that it could always be worse and that we will be able to get through this.

I hope this clears up some of the confusion out there, we have been grateful for all of the calls of support. Also, a huge thanks to those new friends in Iowa City that hardly know us but have been great in watching Gwen and Beckham for us.

Love,

The Scadlocks

A full plate

I don't like to use the term "full plate" very often, letting others know that I am feeling overwhelmed and extremely frazzled. But, in all honesty, I can't think of a better term to sum up my current state of mind and being. Now don't get me wrong, I know that our Heavenly Father does not give us more than we can handle, and I absolutely know how blessed our family has been, but I'm just saying that right now things are a little...umm...crazy, and I could sure use a breather or two.

With moving to a new town (we still have boxes everywhere), Beck's constant GI tract ups and downs (well, I should say downs because that is the direction all of his pukes and poops go), his unknown cause of what is happening inside his body, Nate's huge graduate school work load, his crazy work schedule (he is working in both Des Moines and Iowa City because he has to work in Des Moines until his insurance kicks in at his new job here), me being 7 months pregnant, Gwen being tugged back and forth between everything (she is amazing through it all!), and on and on and on, we were definitely feeling the pull and pressure of everything. But now, something new has been added, giving us that nudge into the "full plate" zone. I have hesitated about sharing this with the "blogging world," mainly because I am a pretty private person when it comes to my own health, but I know that I have many friends and family out there that would be a little perturbed if I left them in the dark. So, with that said, here goes.

About 3 weeks ago, I found a lump in my neck. It was large enough that it could be seen with the naked eye and it was hard to the touch. After finding it, I immediately found a doctor (we still did not have a family doctor because of just moving here) and made an appointment. Once there, the doctor felt the lump and sent me for labs and scheduled an ultrasound. The labs came back showing that I have Hypothyroidism, and the ultrasound showed that I not only have one lump, but multiple nodules on my thyroid. The small nodules are not overly concerning because 60% of the population have nodules on their thyroid, but the large one was very concerning, so a biopsy was scheduled. After the biopsy (which was surprisingly painful to have a needle jabbed into your neck over and over again), my results showed that my lump is a tumor, a carcinoma, but whether it is cancerous could not be determined. What was determined is that it HAS to come out ASAP, and this is not the best scenario with me being pregnant and having a life inside me that lives off my body. But after visiting with my OB yesterday, it was determined that this is a "must" situation, and it is worth the risks to the baby (which they think will be very small) and myself. One ironic thing is that for both the ultrasound and the biopsy, I was already in the hospital with Beck. So instead of having to drive downtown, I only had to walk across the hall. Nice (ha ha).

The surgery is scheduled for next week, and the results of whether the tumor is cancerous will be determined once it is removed. So, basically, that is where we are at. And to say that I am not frightened would be a HUGE understatement. If you could send a few prayers this way (not only for myself, but for all of us) they would sure be appreciated.

Thanks, and lots of love!
-Kim

Update 9/23/10

Sorry for not posting for the last couple of days. I have not had a laptop in the hospital, and sneaking into the hospital playroom to type on their computer has been impossible because Beckham cannot accompany me because of his "isolation" status. Why, you might ask, does he have "isolation" status? Well, the answer is because they have decided to re-test him for all of the viruses and illnesses that he was tested for a month ago (which were all negative). Anyway, the good news is that we are home! The bad news is that we still have no idea what is going on. I'll first give you an update on his happenings in the hospital and then fill you in on the plan for home.

On Tuesday, Beckham had a special x-ray where he had to drink barium and the doctors watched, by x-ray video, as his system digested it. Our little guy was completely unwilling to drink the barium (can you blame him?), and after an hour of fighting him, he had to have an NG tube put up his nose, and have the barium put into his system that way. Poor guy. At least the test was successful, and it showed a perfectly working GI tract.

On Wednesday, most of the tests and labs came back, showing that Beck did not have a virus or an illness. The only thing that was off in his labs were his Liver numbers, which were above normal. The doctors aren't sure what to think of that, but they did not think it was enough to keep him in the hospital. And because he did not puke or have loads of diarrhea in the hospital, we were given the green light to leave yesterday afternoon. But, of course, on the drive home from the hospital, he puked all over the back seat of the car and he had 5 diarrhea diapers once we got home. Awesome!

The plan for now is to see how he does with being home. Basically, in my opinion, this means that the doctors have no idea what is going on and they don't know how to treat it. I can't blame them because they have truly looked at almost everything. If the pukes and poops do continue for the next couple of weeks, Beck will be having a full colonoscopy. Yikes!

For now we are super excited to be home! I am especially excited to be home and sleeping in my own bed. It is no fun to sleep in a hospital bed, with a three year old, while you are 7 months pregnant.

-Beckham & Co.

Unexpected, yet expected hospital stay

I know that I am WAY behind on my blogging, and most people like to assume (myself included) that "no news is good news," but, in this case, no news basically equals that we have no new news to share because we are still in the same boat.

Over a month ago, Beckham had a hospital stay because of loads of poop and puke. Since then, his poop and puke has not ceased. He has, however, had a couple of good days in a row (over the past month), giving us the hope that he might have actually kicked this GI issue, but we soon learn the hard way that he has not. He was tested for c-diff, CMV, Rotovirus, Celiac disease, lactose intolerance, allergies, CF, IBS, parasites, and much more. All are negative, and that is what is the confusing part. Even with the negative test results, we have treated him for parasites and c-diff, just in case he has a rare form of either that cannot be detected by the lab. And, sadly, they did nothing. He also had an IVIG infusion, hoping that his low IGG levels were the cause of his illness.

Today, Beckham, had a GI appointment and more tests. When I told them about his rough weekend with truck loads of poop and bile filled pukes, they decided to keep us here and do more extensive tests tomorrow. So, basically, that is where we are now. No new answers. No sign of relief. At least our little guy is cute and happy through everything. He even thanked the Life Flight nurses tonight after they poked him multiple times for an IV. What a guy!

I have lots of theories and so do the doctors, but nothing has been determined. Lets hope that tomorrow might shine some light on this mystery. Until then....

-Beckham & Co

The big "30" for the man of the house

Happy 30th Birthday, Nate! You're sure getting old, but we still love you just the same!

Beckham & Baby update

Sorry for the lack in "update" posts on our hospital stay. We are home now (yeah), but we do not have the internet hooked up yet in our new place, so I am trying to update on my phone. If there are spelling and grammar mistakes, please ignore them!

Beckham was released from the hospital shortly after his Sigmoidoscopy and Endoscopy. His Sigmoidoscopy looked great with nothing alarming standing out with the camera. Biopsy's were taken anyway, just to make sure there was nothing unseen that could be affecting him. His endoscopy, however, came back abnormal, with a few things that were slightly alarming. They included swelling in both the esophagus and the upper intestines, and strange line indentations also in the esophagus. There are a few theories as to why these are in this body, but nothing will be determined until all of his biopsy's have come back. We should hopefully know those results by next week, so I will keep you all posted.

After Beck's Tuesday hospital release, I headed back up to the U of I hospital for another appointment for our new little addition. I have had two in depth ultrasounds over the last 2 weeks to check for heart and other defects, and I am happy to report that both have showed a healthy normal baby, and a health normal baby GIRL at that! And we are thrilled (especially Gwen). I will have another in depth ultrasound at 28 weeks to look again for anything suspicious, especially since Beck's heart defect was not picked up at his ultrasound when I was pregnant with him. Cross your fingers!

Hopefully we will have internet access for our next post, but until then, let's hope for no further hospital stays!

-Beckham & Co.

A really "crappy" hospital stay

Excuse my lame attempt at humor in the title of this post. But sometimes you just have to make light of a really poop filled situation!

After an incredible Transplant Games experience (more posts to follow regarding the Games), we made it home and back to reality....or, in our case, this meant that we were back to a whole slew of boxes because of our recent move to Iowa City (I'll try to get to a post about our move as well). Now, for the record, I am NOT a fan of unpacking, and I was looking for every excuse in the book to put off the inevitable, and, sadly, I guess that Beckham took it upon himself to make sure I did not get to unpacking by unloading a whole load of crap - 17 poop filled diapers in one day -, vomiting, and spiking a fever. So, to make a long story short, Beckham, Gwen, and myself had to make a trek to the ER, where Beck was admitted (on Saturday night), and where he is still at today.

Now you might be wondering why I had to take my little Gwen to the hospital as well, and the answer to that is that Nate was at work in Des Moines, which is two hours away from Iowa City, and because we live in a new town where I don't know anyone to call to help me out. Moving bites! Also, you might be wondering what it is like to take a 4 year old and a 3 year old to the ER, while carrying a baby in my stomach, and the answer to that is....well....I sure hope that I NEVER have to do that again!

Now, back to the poop (since that is the main reason for this post...awesome). As of now, Beckham, tests negative to pretty much everything - c-diff (which he had 3 weeks ago), rotavirus, CMV, infection, virus, and so forth- and he has great labs with platelets at 415 and hemoglobin at 12.5. The only tests that have not come back is for a possibly parasite, but the doctors are almost positive that that will come back negative as well.

The plan for today is to do an Endoscopy and a Sigmoidoscopy, to check for something fishy going on in his insides. Beck will be completely out for this procedure...which I am SO thankful for. He has had 2 previous Sigmoidoscopy's, and both were while he was awake, and both were AWFUL to watch! Let's hope today's procedure goes very smooth.

That's it for now. I just heard an explosion from across the room and I have to run and change yet another poopie diaper!

-Beckham & Co.

Video and Print of our meeting with the donor family...

Once we have some time we will put some of this experience in our own words, but until then here is a news story with video that was done on our meeting with the Campbell's.

"2 Families United by 1 Heart"

And here is some reading...

The Star Gazette and their take on the Meeting

Odessa File

Today Beckham runs his race...we will definitely keep things updated as we can (busy few days here in Madison).

P.S - Please excuse my HUGE pregnant body on the video!

First hug!

We're busy here at the Transplant Olympic Games, but I wanted to break away and give you all a sneak peak into our happenings!

Beck got his first hug from his incredible donor mom, Holly. It was priceless, perfect, and worth the wait (and talk about a tear jerker...I still can't look at this picture without bawling).

Happy Birthday to my incredibe miracle three year old, Beckham! What a perfect present for you to receive for your Birthday! We love you!

An amazing fright....please read!

The last couple of weeks have been filled with a fair amount of stress as the hustle and bustle of getting our house ready to rent, packing for our move to Iowa City, and all of our other normal family obligations, have consumed our time, thoughts, and money. Through all of this we have felt an overwhelming urge to scream "can't we have a break?" or "are you serious?" when another thing goes wrong. But, luckily, we have been comforted and fueled by a knowledge that this will all end, that this will all be over soon, and that we have something so much bigger, so much more important, so exciting, and so....umm....amazingly frightening, coming up for our family.

In less than two weeks we will travel as a family to Madison, WI, where Beckham will compete (well, kiddie compete) in the Transplant Olympic Games, and where we will, for the first time, come face to face with the donor family of Beckham's heart, the Campbell's.

About a month ago I was able to speak to Holly - the donor mom of Beckham's heart - for the first time on the phone. I don't have the proper words to say how amazing and neat our conversation was, so the best word that I can use to describe it is "special." And boy was it special! Most of the conversation was filled with tears, which was to be expected (we are females!), but the best part was that Beckham was able to get on the phone and say a happy "hi Ha-wee (Holly)," and "hi Handy (Andy)," to both of the donor parents. It was awesome, to say the least!

Holly has been chosen to sing at the Opening Ceremonies for the Transplant Olympic Games, where they would like Beckham to be on stage while she does so (talk about a HUGE tear jerker). The song she has chosen is the last song that she sang to Jake before he was taken to give his precious life saving gifts, and a song that I used to sing to Beckham right after his transplant to comfort him through his pain episodes and drug withdrawals (we did not know before that we sang the same song to our sons). Please view the link to her video submission below. I hope it touches your heart as much as it has touched ours.

We can't wait to meet you, Campbell's! And while we know this is only the beginning of our personal meetings, I have come to a complete knowledge that our little family is so blessed and so changed to have your family as part of our lives, not only because you gave us the precious gift of Jake's heart that beats so strong in Beck's chest, but because you have given us a complete view of what this life is all about - love, endurance, acceptance, patience, and joy.

Beckham update

It's about time that I posted a "Beckham update" and let you all know how this little guy is doing. So to get right to the point, Beck is doing great....but it has sure taken a lot of time and a lot of meds to get to this point. I'll explain.

After Beckham finished his 4 weeks of Rituxin, we (and his hematologist) were hoping to see much less bruising and some signs that the med had done its job. Unfortunately, no such luck. In fact, his bruising was worsening, and to make matters worse, his iron levels were dropping like crazy. It was decided at that point to give Beck a couple more weeks to respond to the Rituxin, but in the meantime, receive 4 weeks of IV iron.

After 3 weeks of iron, Beck's iron levels had risen, but he looked terrible, with bruises from head to toe, and he was also starting to have trouble with bleeding from his PICC line (not a good sign). When I took him into hematology later that week (this was 3 weeks ago), it was decided to put Beckham back on steroids (boo) and to give him a dose of IVIG. Luckily, the steroid dose was only a 4 day "blast" - 4 days of a super duper high steroids - instead of the normal 2 to 8 week steroid protocol. This meant less moodiness and no weight gain!

After the steroid infusion, Beckham, seemed to respond well....until I decided to play "nurse" and mess with his PICC line, causing it to bleed like crazy and almost come completely out of his arm (seriously, I am mom of the century). This required me to run him into Nate's ER, where Nate tried desperately to save his PICC line, but we eventually had to take him back to Blank Children's Hospital for a new line placed (which they were luckily able to get in the same hole as his previous one - meaning no extra pokes!). Awesome, Kim, awesome!

The great news is that as of this week, Beckham, is finally showing signs of having his antibody under control. His bruising is very minimal and he is helmet-less! Yeah! He is, however, super immuno suppressed, and we are being as careful as always. Let's hope to keep this kiddo healthy so we can make our big move to Iowa City, and for our trip in a few weeks to the Transplant Olympic games, where we are going to meet the amazing donor family of Beck's heart. I guess that means lots of sanitizing wipes and hand sanitizer!

Until then....
-Beckham & Co.

Happy Birthday, Gwen!

My beautiful, little girl recently turned 4....well, that is if you count June 18th as "recently." I know, I know - I am way behind on posts. Things are a little crazy in the Scadlock household with fixing up our place to rent, packing to move, taking Beck to his endless hospital appointments each week, and having to be on semi bed rest because I have Placenta Previa. Yikes! We're all doing great though, and I promise that I will update soon with a summary of the last couple of weeks. But for now, I have to do a little shout out to my 4 year old princess.

How did my little Gwen grow up so fast? I still remember when she was born and how excited we were to finally have a baby of our own. Nate, especially, was in heaven - he was able to sit in the hospital, holding his new born daughter, and watch the World Cup at the same time. To him, that was Heaven (such a typical male!). And now, 4 years later, she still brings us just as much excitement and joy.

Here's a couple pictures of her little party (I tried to upload a video of the party, but Blogger hates me right now and is not letting me. Sorry!).

Gwen's Scooby Doo cake. She loves Scooby Doo!

Gwen blowing out the candles (with a little help from Beckham!).

We love you, Gwen! Thanks for being ours. You have no idea how much you have blessed us with in your four years of life!

No words needed!