Beckham hates lock down as much as we do!Beckham had labs drawn twice this week. The first set of labs showed that his white blood count was in the critical stage. The transplant team did not believe that his labs were accurate because Beckham's platelets are in a very normal range (yeah for that) and it's very strange to have a low WBC and normal platelets. It is also strange because it took 3 pokes (in his head - that's his best bleeding site) and 2 finger sticks, and only a small amount of blood could be drawn. This should not be the case because Beck is on blood thinner and should be bleeding like a hose. His labs were re-tested on Thursday and the same thing happened - 3 pokes, 2 finger sticks, and very little blood. At least we got enough blood for all the labs. The lab tests came back the same results - low white blood count.
The doctors are a little baffled at this. I'm not so baffled - in the sense that when it comes to Beckham he is a mystery and I have come to expect that! For now they have decided that Beck is truly nutropenic (low WBC) and extra, extra immuno suppressed (on top of his already high immuno suppression). This could be caused from the Valcyte he is taking for his CMV. That med is known to cause nutropenia, but usually with the nutropenia there is low platelets to go along with it. His Valcyte dose has been cut in half for now to see if that will help return his WBC to a more normal range.
Anyway, the point is that we have to be extra, extra careful with Beckham right now, and his very low immuno suppressed state. We cannot leave the house except for doctors appointments. We ask that if you are coming to visit us (which we love because we love visitors) please make sure that you are in good health - meaning that you are not sick, think that you are getting sick, or have been around anyone that is sick. Please know that you are always welcome in our house. We are not trying to drive anyone away, just keep our little guy safe.
Thanks for understanding!
5 comments:
OK i would HATE lock down too. Poor little Beckham, how frustrating it must be to stay in the house all the time. I feel for ya Kim. Hope your Christmas is GREAT, your little family is super darling.
Kaidence and Beckham should get together. About last feb-march Kaidence became very nutropenic and the put us back in the hospital(she had .1 white cells). This happened a couple of times. We finally took her off everything (even the meds like Zantac)that could cause it and gave her some lovenox shots and things started getting better on their own after a while. We no longer give shots and only had too for a couple weeks. Knock on wood, but we have not had a problem since. I really think it was the meds. Good Luck and Merry Christmas!!!
Bummer for the lock down! That has got to be soo hard! I hate not being able to go anywhere. Hope all is figured out soon!
Lock down! Poor Beck! I hope he stays un-sick! Little guy! Merry Christmas Scadlock's!
I HATE lock down, it is so hard to stay home all day. I hope you get lots of healthy visitors and have a Merry Christmas.
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