Update 4/22/08

Beck's culture for his ear infection came back yesterday and showed that it is a Staff Infection. Yucky for our little guy, but at least it is not another crazy bacteria infection that his doctors have never heard about. His meds seem to be helping a lot (when we can get them down him) and the creams also seem to help. Beckham's ears ooze not only on the inside but behind his ears and besides the oozing they crack and bleed. We have been given a couple of creams for these issues and I think that we have finally found the one that works.

On to the vomiting issue. Nate and I are at a complete loss on what to do about this. Beckham now not only vomits when we are giving him his meds but whenever he gets mad as well. His vomiting started happening a little over a month ago and at first it was once and week and it has now evolved to almost every day and sometimes twice a day. Because of the large amounts that he is vomiting his weight has gone down and now he now has to have weight checks every two weeks. His weight loss is not the issue that most concerns the doctors, but the fact that he is vomiting his meds. He has to have his meds and there is no way around that. We have used every trick that his doctors and others have come up with. Some of them include flavoring his meds, a binki that you can give meds through, a bottle with a syringe that you can place meds in, spacing out his meds, and on and on and on. You can basically name it and we have tried it. Our baby is just to darn smart and he will not be tricked. This basically only leaves one option and that is a GI tube. We are meeting with the GI doctor soon to discuss this and see if he has any other options. I am truthfully okay with the GI tube because I know he has to have his meds and I know that the GI tube will be temporary. I just hate that Beck will have to get another scar on his little body. But the way I look at it is that if he has to have some sort of set back I think that this is the best option.

A great thing for us to report is that he had his cardiology appointment on Friday and everything looked great. His heart looks awesome and the doctors can't say enough about how amazing he looks. A neat thing that happened at Beck's appointment was that the cardiologist who first saw Beckham after he was born and diagnosed him, stopped by the room we were waiting in. When I first met this doctor he was very "professional" (that is probably the best term to use because he was kind but not overly friendly and I am sure that was because he was delivering very bad news to us and did not want to give us false hope) and this time when he was completely different. He came into the room, went over to Beckham and smiled and played with him. He was so sweet and in awe of how well he is doing. His last words to us before he walked out was "miracles do happen." I was so touched by this because he is right. Miracles happen. My little Beckham is a living miracle. I always wondered what makes a person want to become a doctor (more particularly a specialist in something) or a surgeon or so forth and take lives in their hands and see such sad things. Now I know that moments like when he saw Beckham make his job all worth it.

That's all for now. We will keep you posted on anything else. Have a great week!

-Kim, Nate, Gwen & Beck